We're thrilled to share that the ACR recently published a feature article spotlighting Dr. Susan Murphy's work in participatory research — empowering patients to co-design studies that truly reflect their lived experiences. Read the full story on ACR’s website here.
Our amazing patient partner Sheri Hicks took the stage at the ACR’s Patient Perspectives session, sharing her journey in "Breaking Through Scleroderma’s Invisible Struggles: From Isolation to Connection." Watch the full video here.
Dr. Yen Chen talks about the definition of “brain fog,” its general causes, and how it affects people living with scleroderma. The discussion also covers activities and lifestyle strategies that can help improve memory, focus, and attention. Lots of great information and practical tips for managing brain fog. Please click here to listen.
Ann Mogilevsky, a podcast creator and host of Mogil's Mobcast talks with Dr. Susan Murphy and Mary Alore, our Peer Mentor and RENEW Health Coach. The discussion includes different programs being implemented at the university, such as the Scleroderma Peer Mentor Program, the Scleroderma Backers, and some of the research the university is doing. Please click here to listen.
Please take a look at our Research, Publications & Our Team. Please Contact Us if you would like to know more about our research!