Participate
Studies currently recruiting participants
RENEW
Our team developed a 12-week online intervention program that aims to help people with scleroderma RENEW their energy. Participation involves one-on-one virtual sessions with one of our health coaches, who also have scleroderma, and filling out computer surveys. Participants will receive 1 RENEW care kit and be compensated each time when they complete the surveys.
If you are interested, please email sbolde@med.umich.edu or call (734) 615-8543, or click the sign-up link here https://redcap.link/RENEW-UM.
Learn more about other opportunities to engage in our research and community
Scleroderma Rehabilitation Registry
Click here to view the consent and registration form.
We will inform you about future research opportunities in the UM Scleroderma Program. These study opportunities may be focus groups, behavioral studies, clinical studies, or intervention research. By providing some basic information, we can target our advertisements to specific research opportunities that you might qualify for.
Who can participate?
Adults 18 years or older with a diagnosis of scleroderma.
What is involved?
We will collect contact and personal information to be stored in our registry. We may give your personal and contact information to other researchers whose research is approved by an Institutional Review Board (IRB). We will have access to your medical record to verify your diagnosis and characteristics of your condition and maintain up-to-date contact information.
Who should I contact?
If you have any questions or would like more information regarding the study, please contact the study coordinator below.
Study Coordinator: ssc-coordinator@umich.edu
Michigan Scleroderma Peer Mentor Program
Scleroderma Peer Mentors are Michigan Medicine patient volunteers who receive extensive UM peer training and offer other patients who need support. Please click here to learn more.