Care Partner Support

Supportive Partnerships 

For many people, living with scleroderma is a shared experience that involves their spouse, significant other, family, or friends. People who provide support are often called caregivers. Still, caregiving implies that one person offers care while the other receives it.

In many cases, supporting someone relies on teamwork and sharing responsibilities with the person with the condition. Because this setup is more of a partnership, these support people are called “care partners.”

Below, you will find resources for being a great care partner and taking good care of yourself.

How to Be a Great Care Partner

Learn and Connect

As a care partner, you can learn about the condition, connect with support groups, and learn effective communication strategies.

Take care of yourself 

As a care partner, it's crucial for you to prioritize self-care. Learn more about the necessary steps to ensure your well-being.

Avoid care partner burnout 

Being family or friends of an individual with a rare diagnosis can lead to becoming burned out. Select the link below to learn more about how to avoid burnout feeling. 

Emotional wellbeing 

If you feel overwhelmed or unprepared as a care partner, know you aren't alone. Numerous resources and support groups are available to help you navigate the challenges and stresses of your role.